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International Journal of Environmental Research and Public HealthVolume 12, Issue 9, 25 August 2015, Pages 10329-10351

Measuring disability: Comparing the impact of two data collection approaches on disability rates(Article)(Open Access)

  • Sabariego, C.,
  • Oberhauser, C.,
  • Posarac, A.,
  • Bickenbach, J.,
  • Kostanjsek, N.,
  • Chatterji, S.,
  • Officer, A.,
  • Coenen, M.,
  • Chhan, L.,
  • Cieza, A.
  • View Correspondence (jump link)
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  • aDepartment of Medical Informatics, Biometry and Epidemiology-IBE Ludwig-Maximilians-University (LMU), Munich, 81377, Germany
  • bSocial Protection and Labor, Human Development Network, The World Bank, Washington, DC 20433, United States
  • cSwiss Paraplegic Research, Nottwil, 6207, Switzerland
  • dClassification Terminology and Standards Department of Health Statistics and Informatics, World Health Organization, Geneva, 1211, Switzerland
  • eDepartment of Health Statistics and Information Systems, World Health Organization, Geneva, 1211, Switzerland
  • fAgeing and Life Course Unit, World Health Organization, Geneva, 1211, Switzerland
  • gNational Institute of Statistics, Phnom Penh, 12301, Cambodia
  • hBlindness and Deafness Prevention, Disability and Rehabilitation (BDD), World Health Organization, Geneva, 1211, Switzerland

Abstract

The usual approach in disability surveys is to screen persons with disability upfront and then ask questions about everyday problems. The objectives of this paper are to demonstrate the impact of screeners on disability rates, to challenge the usual exclusion of persons with mild and moderate disability from disability surveys and to demonstrate the advantage of using an a posteriori cut-off. Using data of a pilot study of the WHO Model Disability Survey (MDS) in Cambodia and the polytomous Rasch model, metric scales of disability were built. The conventional screener approach based on the short disability module of the Washington City Group and the a posteriori cut-off method described in the World Disability Report were compared regarding disability rates. The screener led to imprecise rates and classified persons with mild to moderate disability as non-disabled, although these respondents already experienced important problems in daily life. The a posteriori cut-off applied to the general population sample led to a more precise disability rate and allowed for a differentiation of the performance and needs of persons with mild, moderate and severe disability. This approach can be therefore considered as an inclusive approach suitable to monitor the Convention on the Rights of Persons with Disabilities. © 2015 by the authors; licensee MDPI, Basel, Switzerland.

Author keywords

Data collectionDisability and healthDisability evaluationDisability surveysHealth surveysInternational classification of functioningScreeners

Indexed keywords

GEOBASE Subject Index:disabilityhealth surveymeasurement method
EMTREE medical terms:ArticleCambodiacontrolled studydata analysisdemographydisabilitydisease associationfemalehealth care policyhealth surveyhumanmalemeasurementneeds assessmentpilot studyquality of lifesocial aspectsyndrome delineationadultdisabled personepidemiologyhealth surveyhuman rightsinformation processingstatistics and numerical data
MeSH:AdultCambodiaData CollectionDisability EvaluationDisabled PersonsFemaleHealth SurveysHuman RightsHumansMalePilot Projects
  • ISSN: 16617827
  • Source Type: Journal
  • Original language: English
  • DOI: 10.3390/ijerph120910329
  • PubMed ID: 26308039
  • Document Type: Article
  • Publisher: MDPI

  Sabariego, C.; Department of Medical Informatics, Biometry and Epidemiology-IBE Ludwig-Maximilians-University (LMU), Munich, Germany;
© Copyright 2021 Elsevier B.V., All rights reserved.

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